Rare Disease and Not Being Heard by Your GP

Are you struggling to explain your illness to your GP? Living with a rare illness is a struggle, but dealing with an ignorant GP increases that struggle. Those feelings... read more »

Acceptance is the New Super Power

Learning to accept and sit with the facts can take time and emotional energy. Acceptance really is a super power. Most of... read more »

Chronic illness has secrets

Chronic illness has secrets Chronic illness has secrets Chronic illness has secrets. These secrets often don't get aired by the daylight. Most people with a chronic illness or rare disease struggle with daily life. Those struggles are usually hidden from the... read more »